"Wow, this could be massive": Donor-Conceived Families Experience with Unexpected Recontact for Risk of Inherited Cardiac Conditions

Introduction: Recontacting families post-gamete donation, after a genetic diagnosis is made in the donor, can create complex challenges for healthcare providers and families. However, there is little literature that explores the family experience. This study aimed to explore the experiences of parents and donor-conceived young people navigating the recontact process and undergoing predictive genetic testing for an inherited cardiac condition. Methods: Semi-structured interviews were conducted to explore participants' experiences in unexpectedly being recontacted and undergoing predictive genet

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